Scabies survivor. You will get through this. Here’s my story.
I’m one of the guys that wished so badly I had the answers for this and profusely search the internet over looking for some kind of miracle cure. I remember thinking “Why isn’t there more survivor stories to give hope and real answers to the nightmare I’m living right now?”
I’m a single dad and I want to gloss over the ‘hell on earth’ I endured with my 2 sons age 7 & 9 and get to the meat of what I’ve learned in hope that others can be helped and won’t go through what we did.
To make a long, long story short, we fought with this for 2 1/2 years off and on 3 times now... its been 6 months since we’ve had it last and for all I know, it may even come back - BUT, i don’t believe it has to be a nightmare anymore and I think we have learned to just accept living with imperfection through this... well, more than we had when we first got this, lol.
We tried almost every remedy you can find or read about.. we did the cayenne, kerosene, hot baths, essential oils, my family felt so bad for us that they bought us an online scabie resistant package, piles and piles of permethrin cream, .. I just can’t even remember all the stuff we tried... oh, and the washing and drying clothes and freaking out about walking across the floor with dirty clothes or panicking about how to deal with it before and after schools.. it ate up my entire life!! I don’t believe it has to be that way though.
ok, I’m not gonna bore you anymore with what doesn’t work.
To start; here’s an important principle you don’t want to overlook;;; #1 scabies don’t thrive on face. Why? Facial oils, it is moist. Recreate that environment on your body and then half the battle is won. It means, use a moisturizer. Anything. Coconut oil. We used ‘Secret brand Pomegranate body butter’.
Thieves oil and clove oil as resistant scabie killers ( get the good stuff) it can be expensive but it kills resistant scabies. A word of caution here, we mixed this with an oil carrier like olive oil. We mixed 5-10 drops clove oil with some olive oil in palm of hand or as a carry on, we mixed half and half clove with olive oil and kept it in the bottle. This can burn the skin if you put it on too quick after a hot bath or even normally in sensitive areas like under arms, inside elbows and DO NOT. get this on genitals... DO VERY SMALL TEST SPOTS IF NECESSARY. VERY IMPORTANT - for best results TAKE THE TIME TO RUB WHATEVER MITE KILLER YOU USE INTO YOUR SKIN, RUB IT IN.
Thieves cleaner baths and sulfer showers worked good - again, if using a moisturizer afterwards.
I gave up washing and drying blankets. Oh, and the profuse cleaning - no more, I’m done.. my brain just doesn’t want to take on any more unnecessary traumatic thought patterns and the unending cleaning regime is one of those. I went to normal cleaning schedule and all quit changing beds or finding new spots to sleep. This drove me into a nervous breakdown just by overthinking and trying to control everything my kids touched... we started a regular shower or bath (take your pick) routine of trying to shower every 2nd day, change bedding every 4 days. I’d roll up the old bedding and put it away (not in bags or anything) I just carried it rolled up through the house and put it in a room no one really uses. Afterwards I’d take a shower and treat with bug killer of choice.(caution.. hot showers open up skin pores and allow clove or thieves oil to penetrate much deeper, I’d suggest waiting a few minutes before applying that stuff).
Ok, last thing. Pray. The last time we had it, it for some reason just wanted to stick. It was just one bit here, one there every few days and it didn’t seem to matter what we did. At the dinner table one evening I said out loud “ok, God I give this to You, I know I can try and control this and heal this with everything I have - but the healing is from You.” We haven’t had another episode since then, I hope it stays that way.
Clove oil (must be quality, unless you get lucky, the cheap clove just won’t do). Mix with an oil carrier to spread it over your body further. Use caution. This stuff can really burn. If you use this, Please, do some test spots first.
Thieves cleaner. We used this in the bath tub. I’d pour maybe 1/4 cup in the bathtub and soak. I really like this stuff. I’d mix this in a spray bottle for cleaner too.
10% Sulfer soap for showers... this stuff is pretty cheap online if I remember right. Another thing I did with this was to use a cheese grater to make it fine and then add a bunch to a laundry load when washing blankets which I did about once every month or 2. I’d do it on hot and let it soak after it cycled. Then drain and dry... *not rinse it out of the blanket so the sulfer stayed inside the fabric more.
*** And most importantly, use a high quality moisturizer. Very important. This is why they don’t go on your face. They do not thrive on a well moisturized/ oily type surface. This isn’t a science, just find a good quality one and you’ll do fine. Please, even after scabies is gone continue to use moisturizer. Dry skin seems to be the first spot they attack and the hardest places to get rid of them.
There was times we did a clean clothes and fresh bedding for 4 days, then take a break for 4 days and maybe even do it again 4 days later but for the most part we kept it at:
Change bedding every 4 days.
Shower or bath every 2nd day, change clothes every 4 days and change bedding to go with clean clothes that 4th day too.
Most important; don’t worry. There is no miracle cure for this as far as I know, but If you can accept a temporary lifestyle change and not over think things, life can feel pretty normal even while going through this.
About telling others. I’d advise against it’s unless absolutely necessary. I told others in the start and all I did was bring unnecessary panic to others and shame to me and my kids. The hardest part about this whole thing was loosing hope. My biggest mistake in the start was thinking there was some kind of miracle cure and if I could just get it then I’d be over this nightmare tomorrow - all I did was create a worse situation for myself by letting the situation get out of control and not hitting the mites again and again after I’d weakened them. Perseverance... you may need to get used to a different life style for a while. You will get over this and please don’t give up. You will get your life back... As much as scabies is not something I’d wish on anyone; It has helped me learn that we can smile even in the middle of the storm.